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1.
J Alzheimers Dis ; 84(3): 1115-1138, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34633326

RESUMO

BACKGROUND: Hearing loss is highly prevalent in older adults, particularly among those living with dementia and residing in long-term care homes (LTCHs). Sensory declines can have deleterious effects on functioning and contribute to frailty, but the hearing needs of residents are often unrecognized or unaddressed. OBJECTIVE: To identify valid and reliable screening measures that are effective for the identification of hearing loss and are suitable for use by nursing staff providing care to residents with dementia in LTCHs. METHODS: Electronic databases (Embase, Medline, PsycINFO, CENTRAL, and CINAHL) were searched using comprehensive search strategies, and a stepwise approach based on Arksey & O'Malley's scoping review and appraisal process was followed. RESULTS: There were 193 scientific papers included in the review. Pure-tone audiometry was the most frequently reported measure to test hearing in older adults living with dementia. However, measures including self- or other-reports and questionnaires, review of medical records, otoscopy, and the whisper test were found to be most suitable for use by nurses working with older adults living with dementia in LTCHs. CONCLUSION: Although frequently used, the suitability of pure-tone audiometry for use by nursing staff in LTCHs is limited, as standardized audiometry presents challenges for many residents, and specific training is needed to successfully adapt test administration procedures and interpret results. The whisper test was considered to be more suitable for use by staff in LTCH; however, it yields a limited characterization of hearing loss. There remains an urgent need to develop new approaches to screen hearing in LTCHs.


Assuntos
Demência/complicações , Perda Auditiva/diagnóstico , Assistência de Longa Duração , Programas de Rastreamento , Casas de Saúde , Audiometria de Tons Puros , Demência/enfermagem , Humanos , Recursos Humanos de Enfermagem , Autorrelato , Inquéritos e Questionários
2.
Nurs Older People ; 33(5): 26-32, 2021 Oct 05.
Artigo em Inglês | MEDLINE | ID: mdl-34159765

RESUMO

The number of older people undergoing surgery in the UK is increasing, partly due to an ageing population and advances in surgical techniques. However, outcomes for older patients who have undergone surgery are suboptimal when compared with younger people, especially following emergency surgery. To minimise the risk of adverse events affecting older people following surgery, it is essential that nurses understand how to manage common challenges for this patient group such as delirium, pain, reduced mobility and inadequate hydration.


Assuntos
Tratamento de Emergência/enfermagem , Procedimentos Cirúrgicos Operatórios/enfermagem , Idoso , Desidratação/enfermagem , Demência/enfermagem , Tratamento de Emergência/efeitos adversos , Humanos , Limitação da Mobilidade , Dor/enfermagem , Risco , Procedimentos Cirúrgicos Operatórios/efeitos adversos , Resultado do Tratamento , Reino Unido
3.
Int J Nurs Stud ; 113: 103781, 2021 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-33080475

RESUMO

BACKGROUND: The acute nature of COVID-19 and its effects on society in terms of social distancing and quarantine regulations affect the provision of palliative care for people with dementia who live in long-term care facilities. The current COVID-19 pandemic poses a challenge to nursing staff, who are in a key position to provide high-quality palliative care for people with dementia and their families. OBJECTIVE: To formulate practice recommendations for nursing staff with regard to providing palliative dementia care in times of COVID-19. DESIGN AND METHOD: A rapid scoping review following guidelines from the Joanna Briggs Institute. Eligible papers focused on COVID-19 in combination with palliative care for older people or people with dementia and informed practical nursing recommendations for long-term care facilities. After data extraction, we formulated recommendations covering essential domains in palliative care adapted from the National Consensus Project's Clinical Practice Guidelines for Quality Palliative Care. DATA SOURCES: We searched the bibliographic databases of PubMed, CINAHL and PsycINFO for academic publications. We searched for grey literature using the search engine Google. Moreover, we included relevant letters and editorials, guidelines, web articles and policy papers published by knowledge and professional institutes or associations in dementia and palliative care. RESULTS: In total, 23 documents (7 (special) articles in peer-reviewed journals, 6 guides, 4 letters to editors, 2 web articles (blogs), 2 reports, a correspondence paper and a position paper) were included. The highest number of papers informed recommendations under the domains 'advance care planning' and 'psychological aspects of care'. The lowest number of papers informed the domains 'ethical care', 'care of the dying', 'spiritual care' and 'bereavement care'. We found no papers that informed the 'cultural aspects of care' domain. CONCLUSION: Literature that focuses specifically on palliative care for people with dementia in long-term care facilities during the COVID-19 pandemic is still largely lacking. Particular challenges that need addressing involve care of the dying and the bereaved, and ethical, cultural and spiritual aspects of care. Moreover, we must acknowledge grief and moral distress among nursing staff. Nursing leadership is needed to safeguard the quality of care and nursing staff should work together within an interprofessional care team to initiate advance care planning conversations in a timely manner, to review and document advance care plans, and to adapt goals of care as they may change due to the COVID-19 situation. Tweetable abstract: The current COVID-19 pandemic affects people living with dementia, their families and their professional caregivers. This rapid scoping review searched for academic and grey literature to formulate practical recommendations for nursing staff working in long-term care facilities on how to provide palliative care for people with dementia in times of COVID-19. There is a particular need for grief and bereavement support and we must acknowledge grief and moral distress among nursing staff. This review exposes practice and knowledge gaps in the response to COVID-19 that reflect the longstanding neglect and weaknesses of palliative care in the long-term care sector. Nursing leadership is needed to safeguard the quality of palliative care, interprofessional collaboration and peer support among nursing staff.


Assuntos
COVID-19/epidemiologia , Demência/enfermagem , Casas de Saúde/organização & administração , Enfermagem Prática , Cuidados Paliativos/organização & administração , Idoso , COVID-19/virologia , Humanos , Assistência de Longa Duração , SARS-CoV-2/isolamento & purificação
4.
Artigo em Inglês | LILACS | ID: biblio-1354824

RESUMO

OBJECTIVE: The burden felt by informal caregivers of patients with dementia is a source of physical, emotional, and financial problems. Face-to-face interventions for caregivers have accessibility limitations that may prevent them from receiving adequate care. Telehealth tools can be a solution to this problem. We will compare a telephone psychoeducational and support intervention protocol to usual care for informal female caregivers of patients with dementia treated at Brazilian specialized outpatient clinics. METHODS: In this single-blind randomized clinical trial, the intervention group will receive one weekly call for 8 weeks that addresses issues such as disease education, communication with the patient, and problematic behaviors. The control group will receive printed material on problematic behaviors in dementia. The primary outcome will be the difference in caregiver burden between baseline and 8 weeks, which will be assessed by blinded investigators through the Zarit Burden Interview scale. Caregiver burden at 16 weeks after baseline, depression, anxiety, and quality of life at 8 and 16 weeks are secondary outcomes. CONCLUSIONS: We expect the intervention to reduce caregiver burden. These results could lead to public health programs for improving dementia care in lower-middle-income countries. Ethics and dissemination: This trial was approved by an independent ethics committee. The results will be published in an international peer-reviewed medical journal. Trial registration number: NCT03260608


OBJETIVO: A sobrecarga sentida por cuidadores informais de pacientes com demência é uma fonte de problemas físicos, emocionais e financeiros. As intervenções face a face para cuidadores apresentam limitações de acessibilidade que podem impedilos de receber cuidados adequados. As ferramentas de telessaúde podem ser uma solução para esse problema. Comparamos um protocolo de intervenção psicoeducacional e de apoio por telefone ao tratamento usual para cuidadoras informais de pacientes com demência tratados em ambulatórios especializados. METODOLOGIA: Será realizado um ensaio clínico randomizado simples-cego. Durante 8 semanas, o grupo de intervenção receberá uma ligação semanal abordando questões como educação sobre a doença, comunicação com o paciente e comportamentos problemáticos. O grupo controle receberá material impresso sobre comportamentos problemáticos na demência. O resultado primário será a diferença na sobrecarga da cuidadora entre o ponto de partida e oito semanas, que será avaliada por pesquisadores cegos com a escala Zarit Burden Interview. Sobrecarga da cuidadora em dezesseis semanas após o início do estudo, depressão, ansiedade e qualidade de vida após oito e dezesseis semanas são resultados secundários. CONCLUSÕES: Esperamos que a intervenção reduza a sobrecarga da cuidadora. Esses resultados podem levar a programas de saúde pública para melhorar o tratamento da demência em países de renda médiabaixa. Ética e divulgação: Este estudo foi aprovado por um comitê de ética independente. Os resultados serão publicados em uma revista médica internacional revisada por pares. Número de registro do teste: NCT03260608.


Assuntos
Humanos , Telefone , Cuidadores/educação , Demência/enfermagem , Sistemas de Apoio Psicossocial , Cuidadores/psicologia
5.
Rev. Pesqui. (Univ. Fed. Estado Rio J., Online) ; 13: 1044-1052, jan.-dez. 2021. ilus
Artigo em Inglês, Português | BDENF, LILACS | ID: biblio-1253234

RESUMO

Objetivo: identificar as evidências científicas sobre os cuidados de enfermagem aos idosos institucionalizados com demência. Método: trata-se de uma revisão integrativa da literatura, com a utilização da estratégia PICo. Foram incluídos estudos publicados no intervalo de 2009 a 2018, nas bases de dados LILACS, CINAHL, a MEDLINE e a SCOPUS. Os artigos tiveram sua análise de qualidade realizada a partir do instrumento Mixed Methods Appraisal Tool. Resultado: de 6.144 textos inicialmente obtidos foram selecionados 7 artigos, sendo 54% publicados em 2010 e 14% no ano de 2016. As intervenções identificadas estão relacionadas à prática de atividades físicas e de estimulação cognitiva, as quais demonstram ser bastante positivas no cuidado ao idoso com demência, pois permite estimular funções cerebrais ainda preservadas, promovendo uma melhora na sua qualidade de vida. Conclusão: a maioria das intervenções identificadas podem ser aplicadas pela equipe multiprofissional e podem ser associadas, quando necessário, aos recursos farmacológicos


Objective: to identify the scientific evidence on nursing care for institutionalized elderly people with dementia. Method: this is an integrative literature review, using the PICo strategy. Studies published from 2009 to 2018 were included in the LILACS, CINAHL, MEDLINE and SCOPUS databases. The articles were analyzed for quality using the Mixed Methods Appraisal Tool. Result: of 6,144 texts initially obtained, 7 articles were selected, 54% of which were published in 2010 and 14% in 2016. The identified interventions are related to the practice of physical activities and cognitive stimulation, which prove to be quite positive in the care of the child. elderly with dementia, as it allows to stimulate brain functions still preserved, promoting an improvement in their quality of life. Conclusion: most of the identified interventions can be applied by the multiprofessional team and can be associated, when necessary, with pharmacological resources


Objetivo: identificar la evidencia científica sobre el cuidado de enfermería para personas mayores institucionalizadas con demencia. Método: esta es una revisión de literatura integradora, utilizando la estrategia PICo. Los estudios publicados de 2009 a 2018 se incluyeron en las bases de datos LILACS, CINAHL, MEDLINE y SCOPUS. La calidad de los artículos se analizó utilizando la Herramienta de evaluación de métodos mixtos. Resultado: de 6.144 textos obtenidos inicialmente, se seleccionaron 7 artículos, el 54% de los cuales se publicaron en 2010 y el 14% en 2016. Las intervenciones identificadas están relacionadas con la práctica de actividades físicas y la estimulación cognitiva, que resultan ser bastante positivas en el cuidado del niño. ancianos con demencia, ya que permite estimular las funciones cerebrales aún preservadas, promoviendo una mejora en su calidad de vida. Conclusión: la mayoría de las intervenciones identificadas pueden ser aplicadas por el equipo multiprofesional y pueden asociarse, cuando sea necesario, con recursos farmacológicos


Assuntos
Humanos , Masculino , Feminino , Idoso , Idoso de 80 Anos ou mais , Exercício Físico , Cognição , Demência/enfermagem , Saúde do Idoso Institucionalizado , Cuidados de Enfermagem/tendências , Equipe de Assistência ao Paciente , Qualidade de Vida , Instituição de Longa Permanência para Idosos/tendências
7.
Nurs Older People ; 32(5): 18-25, 2020 Sep 22.
Artigo em Inglês | MEDLINE | ID: mdl-32755078

RESUMO

This is the second article in a six-part series in Nursing Older People exploring the nursing care of people living with advanced dementia. This article considers the complexity of providing personal care, including the need for expert nursing practice to assess and lead the fundamentals of care: washing, dressing, continence care, nutrition and hydration. The contemporary evidence base for effective assessment, care planning, partnership working and evaluation of personal care for people with advanced dementia is presented, supported by sources of further information.


Assuntos
Demência/enfermagem , Cuidados Paliativos , Assistência Terminal , Humanos
8.
J Gerontol Nurs ; 46(8): 17-27, 2020 Aug 01.
Artigo em Inglês | MEDLINE | ID: mdl-32491183

RESUMO

Today, biomedical advancements allow older adults, including those with dementia, to live longer, with most living at home with a lay caregiver. Recent research details the stressful role of caregiving to persons with dementia (PWD). The current qualitative phenomenological study describes the lived experience of caregivers caring for PWD, including their experience with palliative care. A community sample of lay caregivers (N = 11) underwent recorded individual interviews. Interviews were analyzed following van Manen's approach to isolate thematic statements. Most caregivers were older (mean age = 71, SD = 9.6; range = 53 to 84 years) and female (n = 10). Study themes included: (a) Uncertainty: The Slippery Slope, (b) The Sense of Loneliness, (c) Complexities of Frustration, and (d) On the Other Side of the Spectrum. Findings show these caregivers are dealing with a dynamic range of feelings about their experiences. Opportunities exist for health care professionals to discuss such feelings and refer caregivers to supportive services, including palliative care. [Journal of Gerontological Nursing, 46(8), 17-27.].


Assuntos
Sobrecarga do Cuidador/psicologia , Cuidadores/psicologia , Demência/enfermagem , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Cuidados Paliativos/psicologia , Pesquisa Qualitativa
9.
Int J Public Health ; 65(6): 911-921, 2020 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-32519023

RESUMO

OBJECTIVES: This study aimed to compare informal caregivers/dementia caregivers to non-caregivers regarding alcohol consumption, smoking behavior, obesity, and insufficient physical activity and to identify caregiving-related factors (caregiving intensity, length of caregiving, relationship to the care recipient, and type of caregiving task) which are associated with behavioral risk factors in caregivers/dementia caregivers. METHODS: Using cross-sectional data from the Behavioral Risk Factor Surveillance System, we performed the statistical analyses applying logistic regression models and accounted for confounding using the entropy balancing approach. RESULTS: For caregivers (n = 12,044), the odds of overweight/obesity and smoking were higher (OR = 1.14/1.34, p < 0.05) and the odds of binge drinking and insufficient physical activity were lower (OR = 0.86/0.83, p < 0.05) than for non-caregivers (n = 45,925). For dementia caregivers, results point in the same direction. Caregiving-related variables tend to influence the likelihood of behavioral risk factors, but depending on the kind of factor considered, in different directions. CONCLUSIONS: Being a caregiver is associated with risky and health-promoting behavior. However, the effects are relatively low. Future studies should study potential pathways between caregiving characteristics, psychological impacts of caregiving, health behavior, and mental or physical health.


Assuntos
Cuidadores/psicologia , Demência/enfermagem , Exercício Físico/psicologia , Comportamentos Relacionados com a Saúde , Voluntários/psicologia , Voluntários/estatística & dados numéricos , Adulto , Idoso , Sistema de Vigilância de Fator de Risco Comportamental , Cuidadores/estatística & dados numéricos , Estudos Transversais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade
10.
Int J Palliat Nurs ; 26(3): 110-118, 2020 Mar 02.
Artigo em Inglês | MEDLINE | ID: mdl-32275475

RESUMO

BACKGROUND: Nurses play an important role in assessing and managing pain. However, this is often poorly managed for people living with dementia. AIM: To explore nurses' experiences of pain management in end-of-life dementia care. METHODS: Using the Preferred Reporting Items for Systematic reviews and Meta-Analyses (PRISMA) guidelines, a systematic narrative review of research papers published in English between 2008 and 2018 was conducted. Data sources were CINAHL, Medline, PsycINFO, ScienceDirect and SocIndex. Articles focused on nursing at the end of life and pain management in people with dementia. FINDINGS: Eight articles were retrieved that met the search criteria. Four studies used qualitative methodology, two quantitative and two mixed methods. Studies from the UK dominated (n=5), the remainder were from Sweden, Norway and the US. Following thematic analysis, three themes were identified: training and education in pain management at the end of life for people with dementia, challenges in identifying pain and pain assessment tool use. CONCLUSION: The review revealed inadequate education for nurses concerning end-of-life care for people living with dementia, notably concerning pain recognition and use of assessment tools. It is recommended that specialist education is mandated for all nurses working with this client group to improve care delivery.


Assuntos
Demência/enfermagem , Recursos Humanos de Enfermagem Hospitalar/psicologia , Manejo da Dor/psicologia , Cuidados Paliativos/psicologia , Assistência Terminal/psicologia , Adulto , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa , Suécia
11.
J Am Geriatr Soc ; 68(8): 1825-1833, 2020 08.
Artigo em Inglês | MEDLINE | ID: mdl-32329901

RESUMO

OBJECTIVES: Our aim was to (1) describe the clinical characteristics and symptoms of people diagnosed with dementia at the time of admission to inpatient palliative care; and (2) compare the nature and severity of these palliative care-related problems to patients with other chronic diseases. DESIGN: Descriptive study using assessment data on point of care outcomes (January 1, 2013, to December 31, 2018). SETTING: A total of 129 inpatient palliative care services participating in the Australian Palliative Care Outcomes Collaboration. PARTICIPANTS: A total of 29,971 patients with a primary diagnosis of dementia (n = 1,872), lung cancer (n = 19,499), cardiovascular disease (CVD, n = 5,079), stroke (n = 2,659), or motor neuron disease (MND, n = 862). MEASUREMENTS: This study reported the data collected at the time of admission to inpatient palliative care services including patients' self-rated levels of distress from seven common physical symptoms, clinician-rated symptom severity, functional dependency, and performance status. Other data analyzed included number of admissions, length of inpatient stay, and palliative care phases. RESULTS: At the time of admission to inpatient palliative care services, relative to patients with lung cancer, CVD, and MND, people with dementia presented with lower levels of distress from most symptoms (odds ratios [ORs] range from .15 to .80; P < .05 for all) but higher levels of functional impairment (ORs range from 3.02 to 8.62; P < .001 for all), and they needed more assistance with basic activities of daily living (ORs range from 3.83 to 12.24; P < .001 for all). The trends were mostly the opposite direction when compared with stroke patients. Patients with dementia tended to receive inpatient palliative care later than those with lung cancer and MND. CONCLUSION: The unique pattern of palliative care problems experienced by people with dementia, as well as the skills of the relevant health services, need to be considered when deciding on the best location of care for each individual. Access to appropriately trained palliative care clinicians is important for people with high levels of physical or psychological concerns, irrespective of the care setting or diagnosis. J Am Geriatr Soc 68:1825-1833, 2020.


Assuntos
Doença Crônica/enfermagem , Demência/enfermagem , Hospitalização/estatística & dados numéricos , Pacientes Internados/estatística & dados numéricos , Cuidados Paliativos/estatística & dados numéricos , Atividades Cotidianas/psicologia , Idoso , Idoso de 80 Anos ou mais , Austrália , Feminino , Humanos , Pacientes Internados/psicologia , Masculino , Pessoa de Meia-Idade , Cuidados Paliativos/psicologia
12.
Nurs Older People ; 32(3): 12-16, 2020 Jun 01.
Artigo em Inglês | MEDLINE | ID: mdl-32237550

RESUMO

This is the introductory article in a six-part series in Nursing Older People exploring the nursing care of people living with advanced dementia. It discusses the complex and progressive array of nursing required to meet the needs of individuals, the provision of personal care, learning and leadership, meaningful activity, and palliative and end of life care. A main theme of the series is the exceptional nursing skills and knowledge required to deliver evidence-informed care with compassion and respect for people living with advanced dementia. This introductory article provides background information to contextualise advanced dementia and identify the main challenges facing nurses, nurse educators and nurse leaders.


Assuntos
Demência/enfermagem , Idoso , Idoso de 80 Anos ou mais , Empatia , Instituição de Longa Permanência para Idosos , Humanos , Casas de Saúde , Cuidados Paliativos , Assistência Terminal
13.
J Gerontol A Biol Sci Med Sci ; 75(11): 2215-2223, 2020 10 15.
Artigo em Inglês | MEDLINE | ID: mdl-32242215

RESUMO

BACKGROUND: This study examined whether biological mechanisms linking dementia caregiving with an increased risk of coronary heart disease can be modified by psychosocial interventions and which caregivers might benefit the most from an intervention. METHODS: Spousal dementia caregivers were randomized to 12-week treatment with either a behavioral activation intervention (ie, Pleasant Events Program [PEP]; n = 60), or an active control Information and Support (IS; n = 63) condition. Indicators of caregiving stress were assessed pretreatment and circulating cardiovascular biomarkers were measured pre- and posttreatment. RESULTS: There were no significant changes in biomarker levels from pre- to posttreatment both by treatment condition and across all caregivers. Regardless of the treatment condition, exploratory regression analysis revealed that caregivers were more likely to show significant decreases in C-reactive protein (CRP) and D-dimer when their spouse had severe functional impairment; in interleukin (IL)-6 and CRP when they had greater distress due to care recipient's problem behaviors; in tumor necrosis factor (TNF)-α when they had higher levels of negative affect; and in IL-6, CRP, TNF-α, and D-dimer when they had higher personal mastery. Within the PEP group, caregivers with higher negative affect and those with higher positive affect were more likely to show a reduction in von Willebrand factor and D-dimer, respectively. Within the IS group, caregivers whose spouse had severe functional impairment were more likely to show a decrease in IL-6. CONCLUSIONS: Unlike the average caregiver, caregivers high in burden/distress and resources might benefit from psychosocial interventions to improve cardiovascular risk, although these observations need confirmation.


Assuntos
Biomarcadores/sangue , Cuidadores/psicologia , Demência/enfermagem , Fatores de Risco de Doenças Cardíacas , Intervenção Psicossocial , Cônjuges/psicologia , Estresse Psicológico/sangue , Estresse Psicológico/prevenção & controle , Adulto , Idoso , Feminino , Humanos , Masculino , Pessoa de Meia-Idade
14.
J Clin Nurs ; 29(13-14): 2083-2092, 2020 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-32065410

RESUMO

AIMS: To examine the delirium point prevalence studies conducted in different inpatient settings and to discuss the implication of the findings for delirium screening, assessment, prevention and management. BACKGROUND: Delirium-a common and distressing condition manifesting as an acute decline of attention and cognition-is frequently overlooked, misdiagnosed or treated inappropriately. This neuropsychiatric syndrome manifests as changes in attention, cognition and awareness, with resultant impact on behaviour, function and emotions. Delirium is recognised as a patient management challenge in the inpatient setting, and there is a need to understand the current point prevalence and assessment practices of delirium. DESIGN: A systematic review and meta-analysis. METHODS: A systematic review of published delirium prevalence studies in inpatient settings was conducted and the implications of findings for delirium screening, assessment, prevention and management identified. The random-effects meta-analysis was conducted among studies measuring delirium point prevalence. The PRISMA statement was used to report systematic review and meta-analysis. RESULTS: Nine studies were included in the review, with sample sizes ranging from 47-1867. Delirium point prevalence ranged from 9%-32%. Hypoactive delirium was the most common subtype, ranging from 23%-78%. Fifteen delirium screening tools or assessment or diagnostic methods were used. Comorbid dementia was present in up to 50% of inpatients. CONCLUSIONS: Gaining a consensus on effective delirium instruments, the time windows for assessment and measurement will be crucial in driving benchmarking and quality improvement studies. RELEVANCE TO CLINICAL PRACTICE: Consistent identification of high-risk patients and treatment settings with elevated risk, accompanied by the implementation of effective preventive and management strategies, are critical to addressing delirium-a frequent and burdensome condition, that adversely affects patient outcomes.


Assuntos
Delírio/diagnóstico , Estudos Transversais , Delírio/complicações , Delírio/enfermagem , Demência/complicações , Demência/diagnóstico , Demência/enfermagem , Humanos , Programas de Rastreamento/métodos , Melhoria de Qualidade
15.
J Nurs Scholarsh ; 52(2): 164-173, 2020 03.
Artigo em Inglês | MEDLINE | ID: mdl-32039556

RESUMO

PURPOSE: This study aimed to evaluate what types and forms of support nursing staff need in providing palliative care for persons with dementia. Another aim was to compare the needs of nursing staff with different educational levels and working in home care or in nursing homes. DESIGN: A cross-sectional, descriptive survey design was used. METHODS: A questionnaire was administered to a convenience sample of Dutch nursing staff working in the home care or nursing home setting. Data were collected from July through October 2018. Quantitative survey data were analyzed using descriptive statistics. Data from two open-ended survey questions were investigated using content analysis. FINDINGS: The sample comprised 416 respondents. Nursing staff with different educational levels and working in different settings indicated largely similar needs. The highest-ranking needs for support were in dealing with family disagreement in end-of-life decision making (58%), dealing with challenging behaviors (41%), and recognizing and managing pain (38%). The highest-ranking form of support was peer-to-peer learning (51%). If respondents would have more time to do their work, devoting personal attention would be a priority. CONCLUSIONS: Nursing staff with different educational levels and working in home care or in nursing homes endorsed similar needs in providing palliative care for persons with dementia and their loved ones. CLINICAL RELEVANCE: It is critical to understand the specific needs of nursing staff in order to develop tailored strategies. Interventions aimed at increasing the competence of nursing staff in providing palliative care for persons with dementia may target similar areas to support a heterogeneous group of nurses and nurse assistants, working in home care or in a nursing home.


Assuntos
Demência/enfermagem , Serviços de Assistência Domiciliar , Enfermagem de Cuidados Paliativos na Terminalidade da Vida/organização & administração , Casas de Saúde/organização & administração , Recursos Humanos de Enfermagem , Cuidados Paliativos/organização & administração , Adolescente , Adulto , Idoso , Estudos Transversais , Educação em Enfermagem , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Países Baixos , Inquéritos e Questionários , Adulto Jovem
16.
Medicine (Baltimore) ; 99(2): e18741, 2020 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-31914092

RESUMO

Inappropriate care for patients with cognitive dysfunction in the hospital could worsen quality of care and medical service satisfaction.All elderly participants were recruited from acute wards of 5 departments in an university hospital. They were administered the Chinese version of Ascertain Dementia 8 (AD8) at admission and the Nursing Service Satisfaction Questionnaire before discharge.A total of 345 participants completed the study. There were 91 (26.4%) participants with AD8 ≥ 2, the cut-off value of high risk of dementia. The prevalence was much higher than prior community-based reports. The Nursing Service Satisfaction Score was significantly lower in AD8 ≥ 2 than in AD8 < 2 (56.99 ±â€Š0.94 vs 60.55 ±â€Š0.48, P < .01).Using AD8 in hospital-based screening might be more efficient than in the community in terms of cost-effectiveness due to higher positive rate and easier approach to diagnostic facilities. AD8 ≥ 2 is also an indicator to identify care dissatisfaction among inpatients. By identifying patients with cognitive dysfunction, such as its related communication barriers, care systems could be tailored for more friendly services.


Assuntos
Demência/diagnóstico , Demência/enfermagem , Programas de Rastreamento/métodos , Satisfação do Paciente , Inquéritos e Questionários/normas , Idoso , Idoso de 80 Anos ou mais , Análise Custo-Benefício , Demência/epidemiologia , Feminino , Humanos , Masculino , Programas de Rastreamento/economia , Programas de Rastreamento/normas , Pessoa de Meia-Idade , Qualidade da Assistência à Saúde/normas , Reprodutibilidade dos Testes
17.
Dementia (London) ; 19(8): 2780-2803, 2020 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-31271044

RESUMO

Many people with dementia, supported by family carers, prefer to live at home and may rely on homecare support services. People with dementia are also often living with multimorbidities, including cancer. The main risk factor for both cancer and dementia is age and the number of people living with dementia and cancer likely to rise. Upskilling the social care workforce to facilitate more complex care is central to national workforce strategies and challenges. Training and education development must also respond to the key requirements of a homecare workforce experiencing financial, recruitment and retention difficulties. This systematic review of reviews provides an overview of dementia and cancer training and education accessible to the homecare workforce. Findings reveal there is a diverse range of training and education available, with mixed evidence of effectiveness. Key barriers and facilitators to effective training and education are identified in order to inform future training, education and learning development for the homecare workforce supporting people with dementia and cancer.


Assuntos
Demência , Serviços de Assistência Domiciliar , Visitadores Domiciliares , Neoplasias , Cuidadores , Demência/enfermagem , Visitadores Domiciliares/educação , Humanos , Neoplasias/enfermagem
18.
Int J Nurs Stud ; 102: 103470, 2020 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-31810019

RESUMO

BACKGROUND: Japan introduced the financial incentives for dementia special care at hospitals in the fee schedule in April 2016. OBJECTIVE: To investigate whether the financial incentives for dementia special care contributed to better patient outcomes after hip surgery for older adults with dementia. DESIGN: Retrospective observational study using the Diagnosis Procedure Combination database and the Reporting on medical functions of hospital beds data. SETTING: Acute care hospitals adopting the Diagnosis Procedure Combination system in Japan. PARTICIPANTS: A total of 20,393 eligible patients aged 65 years or older with dementia who underwent hip surgeries and discharged from 405 hospitals from April 2016 to March 2017. METHODS: There are two levels of dementia care quality categories in the financial incentives for dementia special care as follows: Type 1 requires a multidisciplinary team with geriatric and dementia care expertise and Type 2 requires to assign trained nurses who underwent dementia training at every general ward. The outcomes were in-hospital mortality, readmission within 30 days, and length of hospital stay. We performed generalized estimating equation model or logistic generalized estimating equation models adjusting for individual and hospital characteristics. RESULTS: Among the 405 hospitals, the numbers of hospitals without dementia care incentive, those with Type 1, and those with Type 2 were 207, 99, and, 99, respectively. Overall, the prevalence of in-hospital death and readmission within 30 days was 2.01% and 2.70%, respectively. Overall, the mean (standard deviation, SD) length of hospital stay was 32.0 (20.0) days. There were no significant associations between dementia special care and in-hospital mortality in Type 1 (adjusted OR [odds ratio] =0.87, 95% confidence interval [CI] = 0.66-1.16) and Type 2 (adjusted OR = 1.18, 95% CI = 0.92-1.52), and readmission within 30 days in Type 1 (adjusted OR = 1.11, 95% CI = 0.89-1.38) and Type 2 (adjusted OR = 1.03, 95% CI = 0.83-1.29). Length of hospital stay was not significantly different among hospitals with and without incentive, Type 1 (coefficient -0.23, 95% CI = -2.64-2.18.), and Type 2 (coefficient 0.87, 95% CI = -1.54-3.28). An increase in patient-to-nurse ratio was significantly associated with 2.25 days longer length of hospital stay (95% CI 1.00-3.51). CONCLUSION: Dementia care incentive was not associated with better outcomes in elderly with dementia who underwent hip surgery in Japan, but the worse nurse workload was associated with longer length of hospital stay. Further long-term assessment is necessary.


Assuntos
Demência/enfermagem , Fraturas do Quadril/cirurgia , Idoso , Idoso de 80 Anos ou mais , Feminino , Gastos em Saúde , Humanos , Japão , Masculino , Estudos Retrospectivos , Resultado do Tratamento
19.
JAMA Intern Med ; 180(2): 233-242, 2020 02 01.
Artigo em Inglês | MEDLINE | ID: mdl-31710345

RESUMO

Importance: High-quality evidence on how to improve palliative care in nursing homes is lacking. Objective: To investigate the effect of the Palliative Care for Older People (PACE) Steps to Success Program on resident and staff outcomes. Design, Setting, and Participants: A cluster-randomized clinical trial (2015-2017) in 78 nursing homes in 7 countries comparing PACE Steps to Success Program (intervention) with usual care (control). Randomization was stratified by country and median number of beds in each country in a 1:1 ratio. Interventions: The PACE Steps to Success Program is a multicomponent intervention to integrate basic nonspecialist palliative care in nursing homes. Using a train-the-trainer approach, an external trainer supports staff in nursing homes to introduce a palliative care approach over the course of 1 year following a 6-steps program. The steps are (1) advance care planning with residents and family, (2) assessment, care planning, and review of needs and problems, (3) coordination of care via monthly multidisciplinary review meetings, (4) delivery of high-quality care focusing on pain and depression, (5) care in the last days of life, and (6) care after death. Main Outcomes and Measures: The primary resident outcome was comfort in the last week of life measured after death by staff using the End-of-Life in Dementia Scale Comfort Assessment While Dying (EOLD-CAD; range, 14-42). The primary staff outcome was knowledge of palliative care reported by staff using the Palliative Care Survey (PCS; range, 0-1). Results: Concerning deceased residents, we collected 551 of 610 questionnaires from staff at baseline and 984 of 1178 postintervention in 37 intervention and 36 control homes. Mean (SD) age at time of death ranged between 85.22 (9.13) and 85.91 (8.57) years, and between 60.6% (160/264) and 70.6% (190/269) of residents were women across the different groups. Residents' comfort in the last week of life did not differ between intervention and control groups (baseline-adjusted mean difference, -0.55; 95% CI, -1.71 to 0.61; P = .35). Concerning staff, we collected 2680 of 3638 questionnaires at baseline and 2437 of 3510 postintervention in 37 intervention and 38 control homes. Mean (SD) age of staff ranged between 42.3 (12.1) and 44.1 (11.7) years, and between 87.2% (1092/1253) and 89% (1224/1375) of staff were women across the different groups. Staff in the intervention group had statistically significantly better knowledge of palliative care than staff in the control group, but the clinical difference was minimal (baseline-adjusted mean difference, 0.04; 95% CI, 0.02-0.05; P < .001). Data analyses began on April 20, 2018. Conclusions and Relevance: Residents' comfort in the last week of life did not improve after introducing the PACE Steps to Success Program. Improvements in staff knowledge of palliative care were clinically not important. Trial Registration: ISRCTN Identifier: ISRCTN14741671.


Assuntos
Atenção à Saúde , Demência/enfermagem , Assistentes de Enfermagem/educação , Casas de Saúde , Recursos Humanos de Enfermagem/educação , Cuidados Paliativos/métodos , Qualidade da Assistência à Saúde , Planejamento Antecipado de Cuidados , Idoso , Idoso de 80 Anos ou mais , Continuidade da Assistência ao Paciente , Depressão/enfermagem , Feminino , Humanos , Ciência da Implementação , Masculino , Avaliação das Necessidades , Manejo da Dor/enfermagem , Conforto do Paciente , Assistência Terminal
20.
Ciênc. Saúde Colet. (Impr.) ; 25(supl.1): 2457-2460, Mar. 2020.
Artigo em Inglês | LILACS | ID: biblio-1101067

RESUMO

Abstract Mental disorders (MD) are commonly comorbid with cardiovascular, metabolic, and some infectious diseases. Since the current SARS-CoV-2 epidemic is affecting the most multimorbid individuals, we might expect that the epidemic will be particularly problematic for people with MD. Understanding the burden of an outbreak on mental health is fundamental to effective action towards containing the spread of the disease, as psychopathology might reduce endurance during the lockdown. This can potentially reduce adhesion to ongoing treatment resulting in avoidable recurrence of a disorder. Additionally, there is the stress caused by the eminent risk of infection or economic uncertainty, especially in low-middle income settings. This is an overview on the expected influence of the COVID-19 on mental health from a research group that has not long ago been involved in the Zika epidemic. It aims to discuss the effects of the pandemic on a Low and Middle-Income country (LMIC), Brazil.


Resumo Os Transtornos Mentais (TM) são comorbidades comuns associadas a doenças cardiovasculares, metabólicas e algumas doenças infecciosas. Como a atual epidemia de SARS-CoV-2 está afetando mais os indivíduos multimórbidos, podemos esperar que a epidemia seja particularmente problemática para pessoas com TM. Compreender o ônus de um surto na saúde mental é fundamental para uma ação de contenção eficaz da propagação da doença, pois a psicopatologia pode reduzir a resistência durante o confinamento. Que pode potencialmente reduzir a adesão ao tratamento em andamento, resultando na recorrência evitável de um distúrbio. Além disso, há o estresse causado pelo risco eminente de infecção ou incerteza econômica, especialmente em ambientes de baixa e média renda. Esta é uma "overview" sobre a potencial influência do COVID-19 na saúde mental realizada por um grupo de pesquisa que não faz muito tempo esteve envolvido na epidemia de Zika. Ela tem como objetivo discutir os efeitos da pandemia do COVID-19 em um país de baixa e média renda, Brasil.


Assuntos
Humanos , Pneumonia Viral/psicologia , Pneumonia Viral/epidemiologia , Saúde Mental , Infecções por Coronavirus/psicologia , Infecções por Coronavirus/epidemiologia , Países em Desenvolvimento , Pandemias , Betacoronavirus , Sensação , Isolamento Social , Transtorno Bipolar/psicologia , Transtorno Bipolar/terapia , Brasil , Família , Cuidadores , Infecções por Coronavirus , Demência/enfermagem , Multimorbidade , Acessibilidade aos Serviços de Saúde , Transtornos Mentais/psicologia , Transtornos Mentais/tratamento farmacológico , Transtornos Mentais/epidemiologia
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